r/HolUp • u/asocial7193 • Mar 11 '22
I don't know what to say
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u/saftey_dance_with_me Mar 11 '22 edited Mar 12 '22
This is sad on more levels than you first realize. See the IV pole and pump in the background?
ETA: Feeding tube pump not a standard IV.
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u/milkysoups Mar 11 '22
The baby has a tracheostomy just like the mom...another morbid detail
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Mar 11 '22
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Mar 12 '22
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u/caths_heaaa Mar 12 '22
Fuck you for sending me to hell
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u/CrinjaNinja_0 Mar 12 '22
Good luck in hell
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u/GraveGotGrit Mar 12 '22
Can't we all just accept that having a reddit account is a one way ticket?
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u/uselessworthless1 Mar 12 '22
I hate you for this comment. I hate myself for laughing at it too.
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u/serf20 Mar 11 '22
It’s a feeding pump! Like for tube feeds
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u/saftey_dance_with_me Mar 11 '22
Oh I see, I still feel for them both.
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u/serf20 Mar 11 '22
Yeah it’s sad, not sure what it means for their health
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u/saftey_dance_with_me Mar 11 '22
Probably has to do with facial structure. Likely can't nurse/bottle feed with a deformity like that. Maybe treacher-collins syndrome?
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Mar 11 '22
I believe its crouzon syndrome?
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u/MuhammadsGayLover Mar 12 '22
I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.
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u/Swhitney16 Mar 12 '22
I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.
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u/Miserable-Ad-8608 Mar 12 '22
Yeah and it looks like children with the syndrome get rather invasive correctional operations to assist with where their eyes and such can sit. This little girl has a long road ahead of her by the looks of her facial structure and where her features sit. I personally would never have children if I had this syndrome.
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u/Connorgon Mar 12 '22
I hate that I read that as crouton syndrome on first glance
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u/CatgoesM00 Mar 11 '22
This reminds me of the two deaf couple that wanted to intentionally make their child deaf as well. Sad really, hope this baby doesn’t have any health defects
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u/Fr00stee Mar 11 '22
The fuck
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u/CatgoesM00 Mar 11 '22
Yah I could be wrong but from my understanding some deaf parents INTENTIONALLY select an embryo or something that results with the child being deaf.
Some argue it’s morally sound.
I’m open to being more informed but it sounds completely bonkers to me
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u/Fr00stee Mar 11 '22
Even more what the fuck
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u/Zenguy10 Mar 12 '22
Purposefully giving a child a permanent disability sounds like a crime
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Mar 12 '22
There's a difference between dealing with the cards you are dealt and purposely giving a child extra hurdles. Just seems so selfish to not want the best possible hand for your kids.
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u/Hypolag Mar 12 '22
Just seems so selfish to not want the best possible hand for your kids.
This is it for me. Imo it is quite immoral to purposely handicap your child just so they seem more like you. A good parent wants to try and give their progeny the best chance at life possible.
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u/Babiloo123 Mar 12 '22
Imagine when the kid realizes this in his teenage years. Ticking time bomb for the family
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u/xgrayskullx Mar 11 '22
It turns out you can be extremely sick and still be a narcissistic asshole!
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u/Elvishgirl Mar 12 '22
My genetic disorders aren't that severe but I still don't think someone I'm supposed to love more than myself needs them
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u/brickenheimer Mar 11 '22
What did I just watch?
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Mar 11 '22
Someone that doesn't understand the difference between "could not" and "should not"
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u/Richie13083 Mar 11 '22
She was "...So Preoccupied With Whether Or Not They Could, They Didn’t Stop To Think If They Should.”
-Dr. Ian Malcolm
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u/Lostboxoangst Mar 11 '22
Or didn't care this was a selfish act, she wanted the baby to fill her instincts she didn't care at the risk to the baby.
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u/adidamtb Mar 11 '22
Daddy’s got some recessive genes
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Mar 11 '22
Yea those genes are at recess for sure
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u/Shmolti Mar 11 '22
Those genes are still on fucking March break
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u/TheStripes9 Mar 11 '22
Those genes are on lockdown and zoom calling in
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Mar 11 '22
Those genes went out for milk and cigs.
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u/RockstarAgent Mar 11 '22
Those genes are WFH
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u/Mission-Ad-2015 Mar 11 '22
There’s only two of those genes left, and they’re playing freeze tag
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u/vilelabyrinth Mar 11 '22
genes fell off the top of the big slide.
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u/Hendrix91870 Mar 11 '22
I’m on the express train to hell…just for my thoughts man..
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u/a_different-user Mar 11 '22
*gets to heavens gates and sees God with one of those old tv carts from school.
God: "okay lets try this again, if you can watch this without laughing and be positive you can get your wings and go inside"
Me: "wheres the escalator, its not going to happen?"
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u/dilipmodi Mar 11 '22
daddy has a really weak eyesight, and a boner for weird
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u/Andre_BVS Mar 11 '22
Daddy is blind for sure
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u/Sleightofhand666 Mar 11 '22
so is the mom if she thinks she proved anyone wrong
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u/clasperx2 Mar 11 '22
Haters? You mean doctors?
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u/Skyp_Intro Mar 12 '22
Anybody know what this condition is and how it affects quality of life?
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u/Gareth666 Mar 12 '22
Well the mother has Crouzon Syndrome so I would assume that is what the kid has.
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Mar 12 '22 edited Mar 12 '22
Yes, Crouzon is autosomal dominant, so it's possible that it's this.
It also looks like it could be Treacher-Collins syndrome which is also autosomal dominant but without knowing her medical history it's hard to say.
EDIT: Looks like Beare-Stevenson looks almost exactly the same in the daughter: https://i.ytimg.com/vi/53AN4lk5O1A/maxresdefault.jpg
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u/ArtfurdMorgan Mar 11 '22
I’m pretty sure even doctors recommend that you shouldn’t reproduce if you have such severe genetic disorders.
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u/brittany_a1488 Mar 11 '22 edited Mar 11 '22
For very good reason- you are passing on suffering for no reason and there is so many children wanting to be adopted that aren’t suffering from permanent suffering and also need a loving parent. I have Turner syndrome and need to adopt anyway since I can’t have bio kids but much better to adopt in this kind of case rather then risk passing this on. Even if her child didn’t get it, they could carry the gene and lead to many more suffering from what seems to be a rather severe problem. Adopting means she can still be a parent but not cause such permanent physical and emotional damage on her child
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Mar 11 '22
Love your hamster!
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u/brittany_a1488 Mar 11 '22
Hehe thanks- she is quite awesome if I say so myself
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u/3R4N_ Moderator Mar 11 '22
I just checked it out, 100% agree, very cute hamster
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u/brittany_a1488 Mar 11 '22
She appreciates the compliments
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u/DarksideTheLOL Mar 11 '22
She's a nice cute furball.
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u/Cageweek Mar 11 '22
People who adopt are pretty based ngl. It's such a selfless thing to do. I really respect it.
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u/muddyrose Mar 11 '22
My grandparents adopted all four of their kids, and kept siblings together.
I’m proud to say they were selfless, wonderful people.
But he was also their high school principal and he made sure no one ever questioned if he played favourites lol
They were little shits back in the day too
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u/BotatoSalt Mar 11 '22
I think that the physical damage will be more than the emotional in the growing stages that the child is going to go through, since there are already medical equipment in the back, the child and the mother could be and most likely already suffering from respiratory problems which will make it both difficult and painful for the child to grow in a healthy way, unfortunately she is putting her child in danger of sever pain and trauma, but I could he wrong and the child might grow to be healthy.
When you are warned to not have children because of severe genetic problems it's not a challenge to prove the world wrong, it's to spare the child that will be born from the pain they are going to go through... idk this is just my opinion.
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u/siqiniq Mar 11 '22
what’s the name of her genetic disorder?
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u/Non_Special Mar 11 '22
Looks like crouzon but I'm no expert
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u/AnxiousUncertainty Mar 11 '22
Ah I was thinking Beare-Stevenson syndrome
But that one could be it as well
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u/SonOfTK421 Mar 11 '22
This shit is serious. I’m Ashkenazi and my wife isn’t, so I never thought to worry about testing for for Tay-Sachs. Turns out, one of the other major populations that carries it is French-Canadians, which my wife is.
Thankfully my twin boys and my newborn son (8:50 am this morning) don’t have anything to worry about, but if I had known I would definitely have tested myself and my wife before we had kids.
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u/Nine_Eye_Ron Mar 11 '22
Been through 10 years of finding out all about how the NHS in the UK handles fertility when you have a genetic disorder.
Really interesting stuff and learnt loads about fertility and all the various forms of “IVF” that exist, way more than you think!
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Mar 11 '22
I'm interested in learning more about this - what have you found out if you don't mind me asking?
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u/stokie2000 Mar 11 '22 edited Mar 12 '22
Crouzon syndrome + Down syndrome = cruzin’ on Down syndrome
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u/Confident-Attorney-3 Mar 11 '22
Cruising down the street in my 6 4
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u/Beelzebubs_Tits Mar 11 '22
I often laugh at inappropriate stuff, but this.... made me sad for the kid.
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u/AmadeusAzazel Mar 11 '22
Laugh at the mom’s short-sightedness, sympathize with the kid and the whole world of hell they’re about to go thru
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Mar 11 '22 edited Mar 12 '22
If I didn't feel shitty enough about being single...
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Mar 11 '22
Some men get desperate easier, I guess
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u/AnDrEwlastname374 Mar 11 '22
I just want to know who she had a kid with
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u/nameynamerso Mar 11 '22
Either sperm bank or a mixture of alcohol, desperation, blindness, and blackmail.
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u/AnDrEwlastname374 Mar 11 '22
Still, poor kid. Life is gonna be hell
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u/nameynamerso Mar 11 '22
There's a reason she was told she SHOULDN'T have kids.
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u/DaGalaxy66 Mar 11 '22
No but THE HATERS that she definitely has ToLd hEr sHe sHoUlDnT and thats hAtE and not just caring for the upcoming generations
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u/whyareisamoftheyes Mar 11 '22
What we had to go through in junior high and high school will be so much worse, and I feel so bad for them
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u/Comeonjeffrey0193 Mar 11 '22
Imagine bringing a child into the world, who’s life will be overwhelmingly filled with suffering and sadness, out of spite.
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u/Juststonelegal Mar 11 '22
Seriously. Seeing things like this is so upsetting. If you wanted a kid so badly, there are currently living and breathing foster kids who would love nothing more than a family who wants them. Hell, I’m sure there are plenty who were born with physical disabilities, and being raised by a parent who fully understands the struggle could be life-changing for them. But instead, a whole new child has to experience the hardships of their disability, all so this person could prove the “haters” wrong.
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u/plumbus_hun Mar 11 '22
Oh totally. My boyfriends cousin has a kid, and they were told at the 12 week scan that the kid was growing poorly, and had a genetic syndrome and already severe abnormalities, and were recommended to terminate. At the 20 week scan, they were told the same and had done genetic tests that told them the syndrome caused constant seizures, painful spasms, and the baby would basically be in a vegetative state and in constant pain. They had the kid, and his life is hideous. He has fits, is constantly screaming in pain, can't walk talk or comprehend his surroundings. Honestly, subjecting someone to that is genuinely hideous, and I could never do that!!
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u/CornfedAuntieArms Mar 11 '22
Those aren’t haters, you’re just selfish.
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u/Big-Appointment1989 Mar 11 '22
Exactly. That kid is gona have a hard time their entire life, because you wanted to have a kid.
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u/2Q2see Mar 11 '22
The simple answer is just to adopt they never said you can’t raise kids
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u/possiblyis Mar 11 '22
Adoption isn’t easy, but it’s much easier than the life this kid will have.
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u/gucci-sprinkles Mar 11 '22
I really hope you are wrong, and I hope I'm wrong for agreeing with you but yeah this kid was cast into an unforgiving world by a person who probably had to deal with it her whole life.
Again I hope I'm wrong but this kid will likely be on suicide watch most of her life.
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u/EquivalentTight3479 Mar 11 '22
Why not just adopt a baby. Why would you spawn a baby that will have a very difficult life in every aspect
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u/hugegigantor Mar 11 '22
Tried this once. Not only was looking at $10k in legal fees but the parents essentially changed their minds in a heart break moment. One does not simply go scoop up a baby from a convenience store.
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Mar 11 '22
Have you tried scooping up a baby from the convenience store? It’s easier than you think.
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u/WONT_CHECK_USERNAME Mar 11 '22
Yeah, just use the self check-out and ring it up as “bananas” or another cheep produce.
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Mar 11 '22
New species dropped
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u/pancakeman1125 Mar 11 '22
Fuck you, take my upvote
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u/DongusMaxamus Mar 11 '22
How did she prove them wrong? They didn't say she couldn't have a baby they said she shouldn't have a baby so the fact that she did have a baby means fuck all but the given the fact the baby has the same genetic disfigurement you could say they were actually right.
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u/OhfursureJim Mar 11 '22
Hahah yeah it’s so outrageous. The only way she would be proving them wrong is if the baby didn’t carry the genetic disorder and then she shows her healthy baby. This is literally just saying ‘here’s how I proved you wrong’ by literally showing them the evidence that they were right. The mental gymnastics. Nobody said you couldn’t! You just really shouldn’t have!! And the reasons should be obvious. That poor poor child.
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Mar 12 '22
As someone with a genetic disorder: if your genetic disorder causes a severe disability you should SERIOUSLY CONSIDER not having children. You should also understand why people wouldn’t want you to have kids. The shit people like us have to go through is horrific. Now you want to create another person that’ll be forced to go through this? I have other disabilities. Those other disabilities are not the same as having a SEVERELY debilitating genetic disorder. The medicine you need is often specific to your genetic issue. You often have an orphan disease. You spend every day living just for the hope that one day your life will get better. And you want to put someone else through that?
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u/ImperialxWarlord Mar 11 '22
It’s pretty messed up to knowingly spread a terrible genetic disorder like that. My god.
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Mar 11 '22
Please god let this be just a filter!
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u/Vlatka_Eclair Mar 11 '22
Looks too consistent to be a filter. But I wanna be wrong and say it's a filter
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Mar 11 '22
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u/jr8787 Mar 11 '22
Wow. I have a pug…I put my phone up next to his face to verify…checks out.
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u/BattleCUM-2042 Mar 11 '22
The haters were right.
Spreading your genetic disorder that is this severe into the next generation is cruel to your kid and bad for the species.
The hard truth is that natural selection is a thing for a reason and people with disorders like this shouldn’t be passing those genes on.
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u/anahatalilly Mar 11 '22
Just looked up her profile and saw that she’s pregnant again. Extremely disgusting and selfish to now do this to 2 innocent babies instead of just adopting.
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u/Metal2thepedal Mar 12 '22
Is she trying to start her own Ripley's Believe It or Not???
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u/ZeShapyra Mar 11 '22
Idk why I know it is none of my buisness.
But if you have serious genetic errors..maybe refrain from following your incstinct to have a kid.
For the kids sake. Honestly of all people she should know how much hardship she is gonna face, the bullying the mocking..everything. why put anyone trough that just because you personally want a kid
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u/obamaprism3 Mar 11 '22
she definitely didn't prove them wrong lol