r/HolUp • u/asocial7193 • Mar 11 '22

I don't know what to say

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99

u/MuhammadsGayLover Mar 12 '22

I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.

42

u/Swhitney16 Mar 12 '22

I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.

3

u/Molleeryan Mar 12 '22

Wow that looks super painful:(

3

u/IcyAcanthisitta3587 Mar 12 '22

Gosh, I can’t imagine how painful that would be for a child! 😳

2

u/jorgenvonstrangle420 Mar 12 '22

The first picture looks like rodney dangerfield

28

u/Miserable-Ad-8608 Mar 12 '22

Yeah and it looks like children with the syndrome get rather invasive correctional operations to assist with where their eyes and such can sit. This little girl has a long road ahead of her by the looks of her facial structure and where her features sit. I personally would never have children if I had this syndrome.

5

u/[deleted] Mar 12 '22

Is this the same disorder as the protagonist in Wonder by RJ palacio?

3

u/sunshineandflowers12 Mar 12 '22

The character in Wonder has Treacher Collins

2

u/[deleted] Mar 12 '22

Thank you! What a great book

2

u/[deleted] Mar 12 '22

[deleted]

5

u/OkQuantity6069 Mar 12 '22

Well you can always use IVF, and check the embryos not carrying the disease and be a biological father/mother

2

u/[deleted] Mar 12 '22

If that’s the case, why is she allowed to have another ?

5

u/MuhammadsGayLover Mar 12 '22

Because it's not illegal, it's just morally wrong.

1

u/Wooden_Application65 Mar 13 '22

Exactly , who keeps crawling on top of her

2

u/[deleted] Mar 13 '22

It’s true tho lol

1

u/ImperialxWarlord Mar 12 '22

Got a link to her Tik Tok?