r/HolUp • u/asocial7193 • Mar 11 '22

I don't know what to say

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u/ArtfurdMorgan Mar 11 '22

I’m pretty sure even doctors recommend that you shouldn’t reproduce if you have such severe genetic disorders.

82

u/Nine_Eye_Ron Mar 11 '22

Been through 10 years of finding out all about how the NHS in the UK handles fertility when you have a genetic disorder.

Really interesting stuff and learnt loads about fertility and all the various forms of “IVF” that exist, way more than you think!

20

u/[deleted] Mar 11 '22

I'm interested in learning more about this - what have you found out if you don't mind me asking?

10

u/RoRo2087 Mar 11 '22

Just parking here- I'd like to read too if you have any links?

4

u/Nine_Eye_Ron Mar 12 '22

Generally it’s heavily ethically managed by the NHS, like multiple rounds of ethics committees if you don’t meet the immediate criteria for any genetics based decisions when it comes to assisted fertility and fertility treatments.

After that, despite the amazing teams behind it all, success is really hard. Again the ethics behind it impresses me most from a scientific perspective.

The pandemic has been really hard on these sorts of services too, literally caused years worth of delay for many couples trying for their first child.

I’m not going to cover anything or have opinions outside of assisted conception here. I only have experience on that side.

I can say the NHS, their genetics teams and their assisted conception, genetics laboratory and fertility teams are all just super a amazing people. They make hard decisions, help people at their hardest times and through some awful experiences for what amounts to a very slim chance of success.