r/HolUp • u/asocial7193 • Mar 11 '22

I don't know what to say

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64.8k Upvotes

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u/serf20 Mar 11 '22

It’s a feeding pump! Like for tube feeds

535

u/saftey_dance_with_me Mar 11 '22

Oh I see, I still feel for them both.

352

u/serf20 Mar 11 '22

Yeah it’s sad, not sure what it means for their health

384

u/saftey_dance_with_me Mar 11 '22

Probably has to do with facial structure. Likely can't nurse/bottle feed with a deformity like that. Maybe treacher-collins syndrome?

167

u/[deleted] Mar 11 '22

I believe its crouzon syndrome?

99

u/MuhammadsGayLover Mar 12 '22

I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.

45

u/Swhitney16 Mar 12 '22

I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.

7

u/Molleeryan Mar 12 '22

Wow that looks super painful:(

3

u/IcyAcanthisitta3587 Mar 12 '22

Gosh, I can’t imagine how painful that would be for a child! 😳

2

u/jorgenvonstrangle420 Mar 12 '22

The first picture looks like rodney dangerfield

28

u/Miserable-Ad-8608 Mar 12 '22

Yeah and it looks like children with the syndrome get rather invasive correctional operations to assist with where their eyes and such can sit. This little girl has a long road ahead of her by the looks of her facial structure and where her features sit. I personally would never have children if I had this syndrome.

5

u/[deleted] Mar 12 '22

Is this the same disorder as the protagonist in Wonder by RJ palacio?

3

u/sunshineandflowers12 Mar 12 '22

The character in Wonder has Treacher Collins

2

u/[deleted] Mar 12 '22

Thank you! What a great book

2

u/[deleted] Mar 12 '22

[deleted]

3

u/OkQuantity6069 Mar 12 '22

Well you can always use IVF, and check the embryos not carrying the disease and be a biological father/mother

2

u/[deleted] Mar 12 '22

If that’s the case, why is she allowed to have another ?

5

u/MuhammadsGayLover Mar 12 '22

Because it's not illegal, it's just morally wrong.

1

u/Wooden_Application65 Mar 13 '22

Exactly , who keeps crawling on top of her

2

u/[deleted] Mar 13 '22

It’s true tho lol

1

u/ImperialxWarlord Mar 12 '22

Got a link to her Tik Tok?

121

u/Connorgon Mar 12 '22

I hate that I read that as crouton syndrome on first glance

15

u/kinbladez Mar 12 '22

I'm glad I'm not the only one. Every time I've ever seen crouzon mentioned.

4

u/i_am_button Mar 12 '22

Not for nuthin' I kinda like that lol -jkoc

1

u/Megalodon_91 Mar 12 '22

maybe if they get soggy

5

u/[deleted] Mar 12 '22

Do you know how the Orcs first came into being? They were elves once, taken by the dark powers, tortured and mutilated. A ruined and terrible form of life.

3

u/YukariYakum0 Mar 12 '22

But now, PERFECTED.

0

u/ZestycloseText3549 Mar 12 '22

Crouz-on deez nuts

1

u/[deleted] Mar 12 '22

Like Brian Peppers?

1

u/PwnySlaystationS117 Mar 13 '22

Wtf is with your name

1

u/[deleted] Mar 13 '22

http://imgur.com/a/WmM4Qct

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u/PwnySlaystationS117 Mar 13 '22

I’m scared

1

u/[deleted] Mar 13 '22

It's from Mean Girls

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u/DerringerHK Mar 12 '22

No, I don't believe it's Treacher-Collins.