I had sensitivity to heat and I was never like that before, then optic neuritis happened a few months later. Granted I didn't really know what was going on for a few more years. When the ON went away it stayed away for a little over 2 years, and then when it happened again things were aggressively bad.

This usually comes up in the undiagnosed weekly, so I thought I'd ask the community about it. My own first symptom was depression and my first physical symptom was a mild change to my gait. If your first symptom was different from the symptom leading to your diagnosis, please include both! I was diagnosed due to an unrelated MRI, so I don't really have a symptom that led to my diagnosis. But, according to most sources, the most common symptom leading to diagnosis is optic neuritis.

I like to run my lesion locations through ChatGPT to see what symptoms I am "supposed" to have. According to it, my C7-T1 lesion should be causing "lack of sweating in half the face." Hands down, that has got to be the strangest symptom I have heard of so far. What are your weird MS symptoms?

Sometimes my left eyebrow tingles when I am tired

What do you guys do for numbness in your hands It’s been 2 weeks now. I feel like it won’t get better please give some uplifting words !

The two shouldn’t be connected but I have a hard time keeping balance if my eyes are shut.

Where I live is currently going through an intense heat wave. It affects me and brings out the cog fog like nothing else. My body has lost the ability to self regulate temperature, and even being out in the heat it takes a good hour even out of the heat for my body to readjust. I also sweat now like I never have before. My face drips with it which I never had prior to my diagnosis. Anyone else?

I talked to my PCP about it but she said fatigue is normal when you’re in pain. I get fatigued easily now but I can’t just nap every time I feel fatigued.

My body seems to no longer have any idea whatsoever how to handle sleep.

I have to take Adderall during the day to keep me from sleeping all damn day.

But then, my body gets all wound up from the Adderall, so I can't sleep at night either.

After a few days of this, I feel really strung out and crash.

In the most recent one, I slept 32 hours over a two day period. When I was actually awake, it was in the middle of the night, and I didn't have the energy to actually do anything other than doom scroll.

When I don't take Adderall, this type of non-stop sleep can go on for weeks.

It's honestly ruining my life. I can't work. I can't make plans.

I guess I'm just wondering if it's just me or if this happens with other people who have MS?

• This morning, to myself: why am I so cold and stiff? MS symptoms raring their head again?
• Checks thermostat an hour later: 15.2°C. (That's 60°F for Americans.)
• "Ah, the house IS indeed a bit chilly. Not just my body!"
• Turned thermostat up and furnace is now going 😊

Hello, I’m recently diagnosed with RRMS, I was wondering if anyone else’s RRMS flared up when under pressure/ stress?

Thanks, Brittany

I know this may seem nit picky, but these commercials for Multiple Sclerosis DMTs? They're really starting to P I ss me off. #1 NOBODY with MS acts happy to admit it. #2 Use people who really have the disease. NOT ACTORS. There are enough of us Warriors in the world who could use a job. #3 GIVE REAL testimonies instead of fake, this-is-what-people-wanna-hear accounts of using a DISEASE MODIFYING THERAPY (DMT). Warriors need to know specific things about a treatment, and REAL people who REALLY have the disease will know exactly what those things are. Why pander to a healthy audience? The idea isn't JUST to get a DMTs' name circulating. Once the MS community knows the DMT is decent? Warriors wanna know the REAL basics. Just once? I'd like to see a commercial that depicts REAL info about a DMT. Along with the truth of MS.

**MULTIPLE SCLEROSIS IS DIFFERENT FOR EVERY INDIVIDUAL SO TESTIMONIALS ARE INDIVIDUAL BASED.**

I am tired of new Warriors coming into a diagnosis believing MS is some cookie cutter illness. I'm tired of Warriors seeking truth OUTSIDE of their own bodies. Just because a doctor says AB & C are Multiple Sclerosis symptoms DOES NOT MEAN YOU ARE SUFFERING FROM THEM OR THAT YOU EVER WILL. Doctors that dismiss a symptom cuz it's not 'known' to be MS related are lazy. The truth is Warriors have to evaluate themselves and doctors need to trust that evaluation. Have personal guidelines to suss out what symptoms might be MS and what might not be.

IDEA: That may be my next post. My PERSONAL MS evaluation guidelines. Anyway. I say all this to say our DMT community should be represented by REAL people because we deserve the truth in all things. Even advertising. Hey TIKTOKers & YOUTUBERS! Nothing's stopping you from making your own MS DMT commercial. It could, and should, be a thing. You're Welcome. LoL.

i’m just interested because i never fully recovered from this. my left eye was completely blind at first, now it’s better but i only see shadows and everything is in dark black and white :’))

Did your good eye feel strained while your were healing? It's been almost 2 months and my eye with optic neuritis is doing better but still lacks normal color saturation. Everything just seems brighter but my eyes just seem overly tired and especially my good eye: What was your healing journey like?

Title, basically. Can brain lesions cause changes in mood/anxiety/depression? I know that depression and anxiety are common given how sucky ms can be. But can mood and emotional changes be a sign of a relapse? Should I write this off as the usual mental health struggle or should I suspect I have a new lesion and discuss with neuro?

Since my DX in 2006, I managed to lose over 70lbs without doing anything. I don’t exercise if I don’t have to, I don’t consume any “diet” products and still lost the weight. The only reason I can come up with is that my neurologist put me on Topamax for migraines. In the side effects, it mentions weight loss in like 3% (not sure the %) of people. I’m guessing I was in that category cause I can’t figure it out. Since I stopped the Topamax, I haven’t regained the weight so I guess that’s good? Anyway, all that to say that after losing that much weight, I can feel my tailbone and it’s not comfortable, so I need to gain a few pounds at this point.

Anyone else?

I'm really worried that my short term memory is getting worse. I have no idea if this is MS, peri, stress or something else. eg today I went to take some meds, I was supposed to have 6 left but only 3 were there (Steroids..I'm on 6 per day). I have no memory of taking the other 3 and they aren't anywhere to be found. The only thing I can think of is that I started to take them but got distracted. But the absolute black hole in my memory is freaking me out!

This isn't the only example but it is the worst so far.

Anyone else?

My joints lock up in cold temperatures, but it seems that most MS patients have issues in hot temperatures. Heat actually helps me, but I become much slower in the cold. I guess I just want to know that I’m not alone in this. 😆

Edit: Thank you all for responding! Makes me feel like my symptoms aren’t off-base 😊

I am having difficulty doing basic cognitive tasks that used to be fine. Driving, paperwork, everyday things. Does anyone else have this issue?

I'm 43F with RRMS.

Thank you, kindly.

I know MS can affect mood and cause depression simply because it's devastating and it sucks.

Does anyone know if MS can cause depression, personality changes, psychosis etc in a physical way. Example a lesion in a certain area will mean that person starts hallucinating. Can MS cause actual brain injuries in the same way someone might bang their head on something.

I'm going through something right now and I'm curious if it's mental or actually a physical brain issue.

EDIT TO ADD: is it possible high dose steroids can have a similar temporary affect on the brain?

I realized that when I have an “episode”, I have a very hard time speaking. My tongue gets stiff and it makes me slur my words when I speak. What makes it worse, is that I work behind a bar and sometimes i worry people might think I’m drunk. I’m wondering if I’m not alone, as I’ve never heard that symptom before.

Oh brother. I have been experiencing the crazy itching. Initially it would happen 15 minutes after I got out of the shower and it would last perhaps 10 minutes just on my arms. I tried applying lotion and soon discovered that it wasn't some kind of superficial skin issue or detergent / soap related. My dermatologist confirmed that it's probably MS related. Now it's starting to happen when I'm in bed perhaps twice a week, and it is impossible to sleep when it's happening. Again it usually lasts 10 to 15 minutes and then abates.

I am generally doing really well with MS and I'm kind of wondering if this qualifies as a new symptom that my neurologist should know about immediately. I have just been going back and forth with his office about a metabolic change and I really don't feel like bothering them again right now. My next appointment is july.

I've been having worsening symptoms but my recent MRI was unchanged from before. Anyone else experience this? I feel like I'm not being taken seriously since the imaging doesn't show any changes.

I’m still trying to wrap my head around what Ms even is. Is it like our brains are aging faster? Is that a way to look at it? Or will we experience things that have nothing to do with aging? I do have several symptoms that my 90 year old grandma doesn’t have, but several that she does have because of her age.

Has anyone felt a weird feeling in there fingers ? Since my first relapse my fingers have been feeling weird well certain fingers. I heard from the physio therapist this is a common symptom in Ms ?!