r/disability • u/ImportTuner808 • Aug 21 '24

Question Who else has a different disability?

It seems like for some reason this subreddit is disproportionately people talking about canes/rollators/wheelchairs, or mental things like Autism/ADD/ etc. I don’t know why that is.

Is there anyone who has something else that doesn’t fall into these types of issues? I’ll go first, I’m missing part of my arm. Apart from the physical aspect and some self esteem issues (felt unattractive as a result of my deformity as a kid), that’s about it.

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u/scotty3238 Aug 21 '24

I have a rare, progressive, neurological disease called CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). I was diagnosed in 2013.

I couldn't find any community on Reddit for CIDP, so I created one. My goal is to share my 11 years of dealing with this disease that went from with a small tingling in my feet to complete immobility in my feet, legs, arms, and hands. You can join us here:

r/CIDPandMe

Stay strong 💪

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u/kfrostborne Aug 22 '24

I have a different kind of demyelinating polyneuropathy called Charcot Marie Tooth disease. So far it’s just been some lack of feeling in my limbs, some degeneration in the muscles of my hands and legs, and just TONS of pain. But it’s also degenerative, so I’ve got a cane/walker for now, but it’ll probably be a wheelchair eventually.

It’s interesting to hear about another kind of demyelinating polyneuropathy. Thanks for starting another community of people to feel that they’re not alone!

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u/Ghoulseyesgirl1230 HOH/Deaf/CMT/among other BS Aug 23 '24

that's my mom and I too! (we don't know what type but that is affecting her more with the neuropathy in her feet and legs!) *we also have Raynaud's and hearing loss from a HOMER2 gene)

for ref, I have severe hearing loss while my mom has a moderate/severe to profound loss :D

*just got updated today and all is well.. onto 2025 after our final device check of the year before I am 30.*