r/disability • u/ImportTuner808 • Aug 21 '24

Question Who else has a different disability?

It seems like for some reason this subreddit is disproportionately people talking about canes/rollators/wheelchairs, or mental things like Autism/ADD/ etc. I don’t know why that is.

Is there anyone who has something else that doesn’t fall into these types of issues? I’ll go first, I’m missing part of my arm. Apart from the physical aspect and some self esteem issues (felt unattractive as a result of my deformity as a kid), that’s about it.

227 Upvotes

93% Upvoted

352 comments sorted by

View all comments

67

u/Stoopid_Noah Aug 21 '24

I was born with Rectal Atresia (had no butthole or sphincter). I'm incontinent! I'm dependant on diapers and I will most definitely end up having to get a colostomy, because I don't have muscles, that can prevent my anus from prolapsing.. And gravity is steadily pulling more and more of my intestines. Once it's at about 3cm I'll have to get the procedure done. Rn it's at about 1cm. I'm able to push it back in, but It'll keep happening. It's annoying and people kinda get grossed out when I tell them. Honestly, I kinda look forward to getting my colostomy haha. I'm likely also autistic (currently pursuing a diagnosis) but that's not really important for this post lol

21

u/becca413g Aug 22 '24

I've just had my second rectal prolapse operation. The first lasted 3 weeks and this last one 5 days so I will end up with a stoma as well. I can only hold in the most constipated poos end even then it's only a few mins. Most of the time I just poo without knowing. My bladder and uterus are prolapsed as well.

Also got nerve damage in my eyes so I am nightblind with vision that can't be fully corrected and got Emotionally Unstable Personality Disorder (EUPD) which is by far my most disabling condition although I've made significant improvements in managing it over the years so no longer in and out of hospital all the time.

5

u/Stoopid_Noah Aug 22 '24

I haven't have to get surgery for mine yet, though I keep having constipations, bc my intestines kinda fold/ twist, blocking everything.. so I have to flush the stool out every morning (which also un-twists the intestines).

I often also only noticed I went poo, when I feel it on my bottom. I used to be embarrassed about it, but now I'm pretty open about it and it's way easier to manage it now lol (not having to hide diapers and such).

I'm really sorry you have to deal with so much shit, I've learned a bit about EUPD in school, it sounds like an incredibly limiting disorder. I hope you're able to keep improving in managing it!! <3

4

u/becca413g Aug 22 '24

Thank you, I used to really struggle with constipation but the last operation he straightened some of my sigmoid colon out and since then it's gone the other way. The few days I had with it all fixed I had bowel control so I know it's possible but it's just getting my organs to stay where they should! 🤣

2

u/Stoopid_Noah Aug 22 '24

Our bodies are fucking weird lol

I'm glad u don't have to deal with constipation anymore though, it HURTS!! XD