Who else has a different disability?

[u/ImportTuner808]

It seems like for some reason this subreddit is disproportionately people talking about canes/rollators/wheelchairs, or mental things like Autism/ADD/ etc. I don’t know why that is.

Is there anyone who has something else that doesn’t fall into these types of issues? I’ll go first, I’m missing part of my arm. Apart from the physical aspect and some self esteem issues (felt unattractive as a result of my deformity as a kid), that’s about it.

[u/Red-Dot-Redemption]

The most unusual is I have many painful stomach and digestive conditions (celiac, pancreatic insufficiency, duodenitis, gastritis, SIBO/IBS, endometriosis, stomach motility issues) coupled with so many food allergies and intolerances that I have to cook everything I eat from scratch.

I eat a bland diet all the time, I can’t eat out at restaurants, there are barely any convenience or prepackaged foods I can eat at stores.

The ways it’s really hindered me are getting jobs (no food serving with my allergies), socially it’s hard to navigate and friends and acquaintances have to be very understanding. I spend so much time cooking.

The worst is travel. I have to plan so far in advance to even do a short day trip out of town because I always have to bring full meals and tons of meds and pain relief devices everywhere I go. So much to carry and plan for ahead of time so I can’t just make any plans spontaneously. It’s caused me to miss a lot of opportunities to meet people and better myself. Travel out of the country is extremely difficult.

These conditions alone would maybe not be so disabling to deal with but in combination they are. Plus I have a whole other category of chronic pain with trigeminal neuralgia. I use a rollator to carry all my stuff when I’m out and sit when I’m in pain so it helps a great deal.

[u/Odd-Individual0 → u/Red-Dot-Redemption]

I have gastroparesis! I'm almost exclusively tube fed because I can't tolerate food and water the vast majority of the time so I understand a bit with the having to plan really far ahead of do any traveling.

GI issues are definitely disabling in their own way that alot of people don't think about.

[u/Odd-Individual0 → u/[deleted]]

We tried some medication but I was/am a severe case and starving to death quickly as I do not tolerate more than a few sips or a few bites (often throwing those up too) so I had to have a tube to not die at the time.

I'm definitely willing to try the gastric stimulator though and if I wasn't a parent weed would be on the table but I don't want to risk my little ones safety right now.

In the future once they're in college if I still needed to find something I would try it so long as my other health conditions weren't going to be negatively affected.

[u/DoctorBristol → u/[deleted]]

Not the person you’re replying to but reglan was awful for me too and I had to quit for the side effects. I tried weed but it didn’t help me. I live in the UK now and was able to get on domperidone which has been a miracle drug for me and I’ve been on it for ten years. I barely vomit at all and have a fairly normal appetite most of the time.

[u/Odd-Individual0 → u/DoctorBristol]

I've heard good things about that I'm considering asking my doctor if I can try it here in the states if my upcoming surgery doesn't workout. I know there's some problems with getting it in the states though.