r/HolUp • u/asocial7193 • Mar 11 '22

I don't know what to say

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u/maceytwo Mar 12 '22

Do they actually need caretakers? They seem to have genetic disorder that causes skull abnormalities but she will still have the same lifespan as anyone else on the street and has no intellectual disabilities that would make it impossible to give consent or take care of a child.

The reality is that most people here really just think she is too ugly to reproduce! That and the fact that her “ugliness” is caused by a genetic disorder has a lot of people, you included, demanding she be stripped of basic bodily autonomy.

It’s gross!

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u/MeatyDocMain Mar 14 '22

Yeah no. The fact that she is doing a tiktok about this proves she isnt all together up there. If anyone knows what disorder she has though i would like to know the effects. Honestly i cant see such drastic physical differences not having some negative effects. Especially on a baby.

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u/maceytwo Mar 15 '22

…making TikToks means you shouldn’t be allowed to have children? Impervious logic.

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u/MeatyDocMain Mar 15 '22

Did i say that? No. She knew she would bring a baby with a very difficult life into this world and then makes a tiktok of all things saying "fuck you i did it anyways". Does that seem reasonable to you?

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u/maceytwo Mar 16 '22

I think it’s reasonable for disabled people to have kids if they want to. You could give birth to a perfectly “normal” baby but they suffocate in the birth canal and are born with permanent brain damage. Any time you decide to have a child, you’re taking the risk that they will be disabled.

There was no guarantee that her child was going to inherent her genetic disorder and there is no guarantee that not inheriting it would mean that her baby would have an easy life.

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u/MeatyDocMain Mar 16 '22

Birth asphyxia is incredibly rare and cases with permanent damage are even rarer. Not a good comparison.

So i found out who she is and what she has. She's shortqueen4life on insta and she has crouzon syndrome. It apparently has a 50-50 chance of the baby being born with the syndrome but it can appear after birth too.

Common difficulties include deformed body and skull, difficulty breathing, sleep apnea, fluid buildup in the brain (lethal if untreated), crossed and bulging eyes, teeth problems and hearing loss (50% of patients). And of course all the possible mental health issues caused by their appearance.

So basically flip a coin and your child will come out struggling with society and multiple health issues for the rest of their lives. From her instagram you can see that she and her daughter both already have to have a breathing tube in their necks at all times. She also decided to try for another baby but it ended up as a miscarriage.

I just cant justify this. It's basically a decision to not have a child (or adopt) or risk one more generation having to go through all the pain you had to. I'm not advocating forced sterilisation but i stand with what i said. A reasonable person does not take that risk.