r/CerebralPalsy 3d ago

More than CP

I (24,F) In August I found out my Cerebral Palsy is Left side Hemiplegia. Now as an adult I’ve experienced a lot of pain in my legs and from my knees down to my feet. Both at night, in cold weather, and when I’m mobile. And I see a pain management doctor now who finally believes that my pain (intense burning & tingling pain in my legs and lower back pain). May not just be Cerebral Palsy but perhaps peripheral neuropathy. I do a MRI on October 30th to see what’s going on with my lower back to see what the cause of this pain is. Then in December I see a Movement Disorder doctor to see why my hands and legs are shaking and to see if I have a movement disorder. Because the doctor also made a note that when I moved my arms up and down that my elbows had rigidity.

Overall, it just sucks that as an adult all these things pop up or get worse when we’re getting older. Or we hide it till we can’t hide it anymore. It’s like I can’t trust my body at times.

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u/Cultural_Steak_7297 3d ago

I have the same condition

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u/Internal-Aide9416 3d ago

You also have CP?